I was wrong!

I thought the "Perfect Storm" I experienced (see previous post) was the end. It was just the beginning! I felt ok for about 7 days, mild stomach cramps and slight cold symptoms. The belly skin infection was improving. I had very little of an appetite, I always felt full. So by last Thursday I was dehydrated again. I went for my third ER visit in 10 days and got two more bags of fluid (up to 6 total). My belly wasn't completely healed so I got a new anti-biotic. They also gave me Regalen to help empty my stomach. Meanwhile my husband, who has Rheumatoid Arthritis, had a raging ear infection and cough. He happened to get a TB test and it came up positive. We were panicked. Turns out it is totally dormant and unrelated to his symptoms but it scared us. I can't be tested until I am totally better.

Saturday my abdominal cramps got way worse and by Monday night nothing would ease them. So, back to the ER, another bag of fluids and a prescription for Percocet. They seemed to think it was viral because "my blood work looked normal for me." The next morning when I saw my own doctor she strongly disagreed and said my white count had been plummeting for 2 weeks. The same was true for my platelets and red blood cells making me anemic. She stopped my CellCept for 6 days now, and CT scanned my belly. I went back Thursday (2 days ago) to find out there was no no gallbladder issue, not my pancreas, not a abdominal infection or abcess in my belly. My counts were coming back up and my skin infection was almost gone. I got a bag of fluids and I was told to triple my Prednisone for 3 days. That has got me energized but I am already feeling dizzy (dehydrated) and the lack of CellCept is causing arthritis, and pain in my kidney area (hopefully muscular). Overall I am out of bed for the first time in 2 weeks and Vicodin does make the pain manageable.

I am super thankful to my mother and her husband who drove 2 hours to come help us get our house cleaned up and get Cure4Lupus.org and Cure4Fibromyalgia.org orders shipped. We would have been behind for a month without them! Thanks mom!!!